5/6/2016 Good news!! Last Friday the three children from Aragon who weren’t accesing to the medication they could’ve had a year and a half ago for compassionate use to adress their Neuromuscular degenerative condition, received a call from the Ministry of Aragon saying that they would fight for them and they will have their treatment. With a year and a half of delay-compared to the rest of the children in other Regions of Spain-… But, finally these families have made it!!!
A lot of gratitude is expressed to all the press who have fought for them!! And, to all the patients who have been supportive and caring with these families.
