The Health Department will give Ataluren to the three children of Aragon with a year and a half of delay

5/6/2016 Good news!! Last Friday the three children from Aragon who weren’t accesing to the medication they could’ve had a year and a half ago for compassionate use to adress their Neuromuscular degenerative condition, received a call from the Ministry of Aragon saying that they would fight for them and they will have their treatment. With a year and a half of delay-compared to the rest of the children in other Regions of Spain-… But, finally these families have made it!!!

A lot of gratitude is expressed to all the press who have fought for them!! And, to all the patients who have been supportive and caring with these families.

Foto niños abrazo


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